Wednesday, April 16, 2014

Nice, Needy, and Neglectful

Here is My A To Z Challenge. An adventure. My attempt at telling you my story. I care for my husband who has end-stage Parkinson's disease.
We have good days and we have bad days. Hope you will follow along....A TO Z!

I am nice and he is needy.
And many things are neglected.
I could leave it at that.
But it wouldn't be true.
So I'll have to work it out.
He is too nice and at times I am too.
The feelings I protect are his.
But if others get in my way I will become
like a snake and hiss.
It's hard to be nice when things need done.
His needs are many.
And many more will come.
He can't get up alone.
He cannot walk.
He cannot bend either arm.
He needs help with water.
And help with food.
And all of his dressing, I need to do.
Many trips to the bathroom.
Pushing, and pulling, and standing and sitting
Are things I do all day long.
Sometimes it is funny and other times sad
And sometimes I do it wrong.
He likes to tell me when I mess up.
God Bless him for that.

Many others areas are neglected.
Like family and friends.
The inside of the house; the outside too.
I don't clean bedrooms or under the bed.
If he can't see me he gets worried
So I clean where he's at.
The laundry piles up. The kids will help.
When they are home. I have errands to run.
But I have to hurry or he won't be nice
Things get neglected, but it will be alright.
Because he is needy and I need to be nice.


  1. It's nice to be nice always. And still good to be nice to the needy.
    Nice post :)

    1. Nice isn't always the easiest thing to do however!

  2. I love this!. A really interesting post. Thank you so much, nice to follow and connect through atozchallenge.

  3. It's nice to be good, but it's good to be nice. I found N the hardest letter so far, but this is amazing! well done

  4. Replies
    1. Now that is much harder to do for me my One Word Wednesday

  5. I agree with what Wendy said, do remember to be nice to yourself also; you carry a big burden, you need to make sure you take a bit of time for yourself here and there so that you don't end up being in a position to be needy too, but in saying that, I know it is hard with all the things you are responsible for.


  6. Caregivers are amazing and much needed treasures. I admire you and you are an inspiration.

    Visiting from a-z challenge.

  7. It's a hard stage. I feel very much the same with the demands of my littles, whom I home school. My youngest has always been extremely mischievous, but not maliciously so. It's rare I can let him out of my sight without a catastrophe occurring, so I understand. May the Lord grant us both patience and endurance, eh?

    True Heroes from A to Z

    1. That is exactly how it feels. I feel like a single mom with now 3 kids! And they all can be naughty and needy at times.

  8. This is tough to read. Please don't forget, you probably would be a lot younger if you were a mom with three kids. After thinking about what I just read, I worry. I think blogging, being with old blogger friends and making new ones is great for your emotional well-being. But what about the physical? Are you strong enough to keep lifting and helping like this? It sounds like so much. There is so much love in your posts too. I will keep thinking of you, my new friend.

    1. That is true. I would be a lot younger. I am 18 years younger right now than my husband. Thirty-seven years ago when we got together the age didn't seem like such a big deal. I was 26 and he was 44. But now I don't know whether to be glad that I am younger or sad. Glad that I have more ability to take care of him then I would if I were his same age....or sad that he will leave me sooner than I will be ready for it. Both ways has its good and bad. Thank you for being my new friend

  9. Thanks for sharing this insight into your life. I was very moved by your story and touched by the love combined with responsibility for your husband. Not all our paths are easy ones to follow, but it sounds like you are doing a wonderful job. Cheers from Oz and the A-Z Challenge.

  10. You know, I'd wondered when/where you managed to blog! Are Richard and/or your grands interested in your blog - or, is that off-limits?
    For what it's worth, I think you've got your priorities right. In the big picture who cares about what dust bunnies abide under the bed? And if they do, they're not real friends!

    1. He knows that I blog. I know that my son, Justin, knows that I have a blog. Now whether he reads it I don't know. Same with the grandkids. I don't think they really are at that point where they are interested in reading my blog. Now about those dust bunnies, it is more ME that they bother....

  11. How nice you've got the kids to help you. The house is secondary to the other things you need to do. Perhaps the rest of the family could purchase several housecleaning's for you?
    Sandy at Traveling Suitcase

    1. Ha! Ha! I can barely get the rest of the family to even care what is going on here. But I am ever grateful for my grandkids!


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