Sunday, June 29, 2014

Our New Normal...I Guess!

It has been almost 72 hours since we put on the first Fentanyl patch. It seems to be working. He is NOT complaining of pain. He is more awake. But he is very, very quiet. He is now spending more time in his bed. Less time in the chair. I get him up for breakfast and dinner. He eats a bit. Not a lot. He is still taking fluids well. He is very, very weak. The cough is still with us but his cough effort is weak as well. 

So, I guess this is the next step. My cousin left Saturday morning. My son is here now. The kids will return tonight from their mission trip in Chicago. And we will begin to live our new normal...I guess!

21 comments:

  1. Hi Paula, I just caught up on your latest posts and learned what is going on with Richard. Even though I have been too tired to visit blogs, I have been thinking of you and yours probably will be the only blog I will read for some days to come. Just wanted you to know that you and Richard and your family are in my thoughts and prayers.

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    1. Thank you so much Inger. I am praying for you and your husband as well. I know the journey you guys are embarking on will not be pleasant but it is all in God's hands now. Bless you!!!!!

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  2. It's good to hear the patch seems a right fit ... and that Richard's staying hydrated. (OK, that's about the extent of my health-care knowledge.)
    More importantly, 'YEA!' that Darian and Harley will be returning tonight! I hope that lifts their poppa's spirits ... and yours, as well.

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    1. Yes, Papa was happy to have them home. I will be posting somethings about their trip in a future post. He is comfortable but we have reached a new stage, I am afraid

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  3. I know you will be glad to see the kids! I am glad that the patch seems to be working well for this stage. Continuing to pray for you both.

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  4. Knowing that Richard is not in pain must be a bit of relief for you. You have the right outlook about this next turn in your journey by accepting it as your family’s new normal

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    1. Yes it is a bit of a relief for me.....We now need to accept our next chapter.

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  5. I'm glad to hear Richard is not in pain and the patch is working. I hope it continues to work. Good to hear the kids are coming back tonight; I know all will be glad to see each other again! I have a post I'm putting up later tonight talking about accommodating and I mention you in it. I hope this new normal lasts a bit before you have another new normal to adjust to.

    betty

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    1. Thank you betty. I will be over to check it out. I got a bit behind with my blogging with all of this going on. I have missed you guys

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  6. I am so glad the kids are coming home - kids make everything better. Mine put things in perspective, that's for sure. They can roll their eyes at my mom and at me. They can laugh when it's clearly not appropriate, but it's funny anyway. They can help. And they can still learn and grow and appreciate and love you. And they do. I'm happy that the patch is working, but I'm sorry for your new normal. It's better than the drugged-out normal, but the quiet might be scary. (I just snickered typing that because my mom has not stopped talking today. Not even to nap or watch a show or anything. Yammer, yammer, yammer. It's so bizarre. And it will probably change tomorrow, but for today - non-stop questions and rambles and if anyone else dares to speak - wails and moans about her back pain...which I'm pretty sure she isn't feeling, but it's a go-to topic guaranteed to get her attention! She has counted the cars outside on the street at least 25 times. Apparently while I was outside mowing the lawn, she just continued to talk to me through the window and then get angry when I didn't answer!!!) You know I'm sending hugs and prayers and love and internet chocolate and wine!!!

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  7. It must be a big relief that Richard's not in pain. And I can't wait to hear about the mission trip--I hope you'll be able to share some of their experience.

    sending many hugs!

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    1. Thanks Kwiz. I am grateful for the pain relief. I will try to share some of their mission experiences.

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  8. "new normal."

    How many times I have used those words. It has completely distorted my feeling about "new". I used to think of new as something bright and shinny. Now it has a more sinister side.

    Caregiving changes so many things.

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  9. I'm so sorry for what you and your family are going through.. I'm glad the Fentanyl is doing its job and keeping him comfortable.

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  10. So happy to hear the Fentanyl is working. Not sure if you have experienced the patches pealing up prematurely or not due to sweat, movement, shower, etc. They never stayed on TheHubs very long due to the heat here and his placement. Eventually he was only able to wear them on his upper arms.We used to use the bioclusive/tagederm patches that go over the patch to help keep it in place. But then TheHubs developed a rash after a while. It was bad. Hope it isn't that way for you! Just keep an eye on them.

    Jamie Dement (LadyJai)
    Caring for My Veteran
    Be Positive in Life and Writing

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    1. So far all has been okay for him. He is now bedfast so the patches aren't moving. When I worked in the nursing home we sometimes had to use the Tegaderm patches to cover them

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  11. I am glad the patches seem to be working and that Richard is resting peacefully. Keeping you and yours in our thoughts and prayers

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