We have good days and we have bad days. Hope you will follow along....A TO Z!
If you have ever lived with dementia.
You'll know exactly what I mean.
Some days everything is funny.
And other days you just want to leave.
Sometimes I can laugh out-loud.
When he is crazy as a loon.
Other times when he's repeating things over and over
I want to take a trip to the moon.
He's wacky as wacky can be.
Especially as night draws near
We call it 'sun-downers syndrome'
It's good that I am not standing
With him at the end of a pier.
Worse are the days when he is whiny.
Those are the days that I hate.
The days that I wish I could leave
And be done with it all finally.
He's needy and whiny and crazy.
I can't sit around and be lazy.
As soon as I sit there's another need.
His demands are wearing me out.
Get me this, get me that, where is it at?
Where did you go? Sit me up. Lay me down.
And on he goes, round and round.
Wacky and whiny are wearing me out.
But there's no one here to hear me shout.
They tell me "he doesn't mean it."
"Give him what he wants."
"His days on earth are numbered."
It all makes me want to disappear and pout.
No one cares that I am exhausted.
As long as his needs are met.
For to others who aren't here for 24 hours.
Have no idea how hard it can get.
I'm worn out and I know it.
But I need to take care of wacky and whiny
And then I'll go out for a bit.
But I'll be back again soon.
It's a make-believe trip to the moon!
(I know that all of this sounds depressing and whiny to those who are reading my A to Z posts but in reality for the most part our life is not all that bad. Yes, I am tired. Yes, he can be demanding. But would I have it any other way.....well, maybe! No, of course I wouldn't. I just have to come up with words that work for A to Z. So I am NOT a strong WONDER WOMAN in any way...I am just doing my job as his wife)